I apologize. I’ve been remiss keeping up with my blog these last few months, but at least with good reason. After being nominated to the board of Home Dialyzors United, I once again indulged in my lifelong passion of advocacy work. I had also been volunteering at my grandkid’s school, and now found myself really devoting time to helping them through some difficult transitions. And just to see if I could physically handle it, at 63, I went back to work, albeit part time! That was a tough one! Even just 10-15 hours a week seemed like a monster challenge at first, although now, after a few months, I am happy to say I’ve adjusted.
The elusive dry weight. That magical number that controls every treatment. Take off too much and you can experience the dreaded cramping. Take off too little and you leave with that heavy feeling, or even worse. The bottom line is that the kidneys control the fluid in your body, and how your body gets rid of it. If they are not working properly, your body is going to have a fluid buildup somewhere. Continue reading
Now that I’m settled into the routine of home hemo treatments, I can take a moment to reflect on what it was like to do dialysis in-center. I remember early on, like 10 years ago or more, when the nephrologists were pushing me into starting dialysis, I went to several clinics (full disclosure, the clinics were owned by those self-same nephrologists). All I remember was the overwhelming smell of death, and staring at what appeared to be comatose bodies hooked up to machines.
Is it any wonder I refused to consider dialysis? I recently told my newest, and bestest, nephrologist, that his colleagues had done a grave disservice to potential dialysis users by not presenting a more positive outcome, and explaining that it really was possible to achieve life after dialysis. He agreed! Continue reading
I woke up from surgery, with the surgeon leaning over me saying “from now on you must treat your arm like it is your lifeline, because it is!” and so my journey began. Continue reading