dry weight, that elusive, magical number

The elusive dry weight. That magical number that controls every treatment. Take off too much and you can experience the dreaded cramping.  Take off too little and you leave with that heavy feeling, or even worse. The bottom line is that the kidneys control the fluid in your body, and how your body gets rid of it. If they are not working properly, your  body is going to have a  fluid buildup somewhere. Continue reading

my fistula: good, bad, and the ugly, part 1

Let’s talk about the fistula. Honestly, can anyone say they really knew what a fistula was before they got one? I for one, had not a clue. Which for me, I still say, was a good thing or I might never have signed the papers agreeing  to the surgery.

I thought I knew what a thrill was, even if it’s been many years since I’ve had one, but nothing prepared me for that constant buzzing, or “thrill”, that I now feel in my arm. Continue reading

in-center

Now that I’m settled into the routine of home hemo treatments, I can take a moment to reflect on what it was like to do dialysis in-center. I remember early on, like 10 years ago or more, when the nephrologists were pushing me into starting dialysis, I went to several clinics (full disclosure, the clinics were owned by those self-same nephrologists). All I remember  was the overwhelming smell of death, and staring at what appeared to be comatose bodies hooked up to machines.

Is it any wonder I refused to consider dialysis? I recently told my newest, and bestest, nephrologist, that his colleagues had done a grave disservice to potential dialysis users by not presenting a more positive outcome, and explaining that it really was possible to achieve life after dialysis. He agreed! Continue reading